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Reds that lean more violet or pink than red are also your best bet. I had RAI 1 month ago. Instead, you are now hypothyroid (7) (meaning you dont produce enough thyroid hormone on your own). Several of my siblings make fun of me and say I am hiding but dont even know what Graves disease is and I was not around them and did not share my health issues until recently with them. I also happen to formulate the best supplements on the market (well, at least in my opinion!) American Thyroid Association. Now, yesterday and today I had my Thyrogen injections, and tomorrow I go get my I 131 RAI pill and on home isolation for the following 7 days, and then my whole body scan. Thank you. Can You Eat Soy If You Have a Thyroid Condition? There is nowhere else to go tricare insurance is awful. So, if papillary or follicular thyroid cancer has spread to any other part of the body, we can still use this therapy to find and destroy it. Avoid sleeping in the same bed with a pregnant woman, infant, or child for a period of six to 23 days. In regards to your question, its normal to feel terrible if your TSH is so high, but its not normal for your doctor to try and not optimize this level. Initially, before treatment I went to a renowned clinic due to having double vision. Commentdocument.getElementById("comment").setAttribute( "id", "a7703e5f38024655a2d5bbdddbfa13ec" );document.getElementById("bc952adef4").setAttribute( "id", "comment" ); Hey There! In your case, these would be best: https://www.restartmed.com/product/thyroidectomy-rai-bundle/. The answer is maybe, and it depends on the person, how much damage was done to their thyroid, and other factors that arent always in your control. What are you concerned about? It seems though that people who are already overweight BEFORE their procedure probably have the worst outcome and tend to gain the most weight compared to others. Hi! 5. It was also noted my B/P was sometimes Hypertensive, and my glucose readings were starting to climb. I have Graves disease and recently have a hyperthyroid flare up after being in remission, I went back on my meds but was recently taken off to see if I can do radiation. So I have graves disease but was only diagnosed because I was actually gaining weight. If you will be traveling via airplane or crossing an international border in the period following RAI treatment, you must be provided with a written document from your healthcare provider stating they you have been given a medical treatment involving radiation, as security monitoring devices can detect it. Can Hashimotos Be Reversed? Since then I have suffered most every day with severe chemical sensitivity. Information for patients administered radioactive iodine (I-131). Some people may have a feeling of tightness or swelling in their neck for a few days after treatment. They do this by either stopping your oral thyroid medication or giving you thyrogen. Thyroid hormone regulates the metabolic rate of an animal. It was not and I have been searching for help ever since. These are just a few of the questions that I want to answer in this article. P.S. This content is strictly the opinion of Dr. Westin Childs and is for educational and information purposes only. It turns out, which should come as no surprise, that medications are not a 100% complete substitute for the activity that your thyroid gland does on a day-to-day basis. Im a nurse, and tend to over think things. You can get by this side effect by simply banking some of your sperm prior to your procedure and then using that sperm at a later date with procedures such as intrauterine insemination. I have a quick question. Another problem Ive faced is I ask one doctor about this or that feeling Im having and I get told that doctor doesnt deal with that have to tell the other doctor, I tell the other doctor and they tell me I have to tell another doctor because they dont deal with that issue. Consuming excess iodine: If you're at risk for hyperthyroidism and consume too much iodine (through your diet or medications), it can cause your thyroid to produce more thyroid hormone. I was tested in 6 weeks and my thyroid numbers were still high so I was not tested again until Feb. 2019. I can barely eat . Is there specialist out there that can look at your overall health history and help you get a regime that is right in regard to everything that is going on with you, i.e. Thank you! I am going in for radioactive iodine treatment next week and wanted to ask what the best diet plan is that can stop me gaining more weight and help me to reduce my bmi. The other 20% may require additional testing and the use of other thyroid medications which contain T3 thyroid hormone. Im hoping I still have some thyroid function based on the fact that he kept lowering my dose of levothyroxine and I can just take your supplements and see some weight loss and feel a bit better. There isnt a specialist in the area of hormone balancing but you can use the resource above to help you find someone who can help you. One of the more surprising aspects of getting RAI done is the fact that you are quite literally radioactive after your procedure. I have since been on a roller coaster ride with the levels fluctuating up and down and not sure why. Yes I took the radation iodine pill five days ago what can I take for itchy skin I got some cortisone will that help. Because of PTC, I had a total thyroidectomy two weeks ago and now on Levo. Before they killed my thyroid and before it was even diagnosed the heat affected me something terrible and would just take my breath away. https://www.restartmed.com/product/t3-conversion-booster/ This particular visit, my HA1C was up to 6 point something, and caused alarm as I am strict with my diet, admit though at that time I allowed myself a free day to eat as much and all the treats I wanted or craved. While you cant control this side effect 100%, you can do your best to mitigate (or reduce) any weight gain by going into your procedure at a normal and healthy weight. Whatever touches your skin will pick up a small amount of radiation. My hair has been a part of me for many years, it is waist length, and Im wondering if having it cut off and sent to make a wig for myself would be best or just wait and see if I do in fact loose my hair. I'm Dr. Westin Childs. This is an FDA and EMA approved drug used for the treatment of thyroid cancer refractory to radioactive iodine treatment, renal cell carcinoma, and hepatocellular carcinoma. Youll still need to get those but the supplements can be used in addition to them. Radioactive iodine is created when the unstable atoms of radioactivity is piggybacked onto iodine so it will be absorbed by the body. Keep Your Distance. If you destroy the entire gland then you will definitely need to be on thyroid medication. What do you recommend? She said I am normal and not to worry. of radiation.But I wonder after that if I can dye my hair.Unforuntly it is coming back completly gray.I will be thankful to have hair.But I don,t look good with gray either.I know some people do.Someone said they thought you had to wait a year.I hope their wrong.Thanks for your replys. My only option for help is the ER which is somewhere I dont want to go with all the crap a going around. The real concern with radiation exposure to others in your family has more to do with them coming into contact with actual contamination. Swelling and tenderness of the salivary glands. It can be an iodine-based material, barium-s ulfate, gadolinium, or saline and air mixture that can be swallowed or injected intravenously. But, if I was being honest, I think that most people should not rely on the possibility of restoring much thyroid function after their procedure. Hi doc! Be particularly careful around infants and children, who are especially at risk for exposure complications. Additionally, there is also a hypersensitivity reaction. #3. With that in mind, lets jump into what you should expect after your procedure. I am feeling all the emotions you described, depression is a big one, but all anyone is interested in is giving me another pill to make me happy again. I have battled my weight since I was a child, I had dropped from 400 pounds to 210 about six years prior, and was afraid all my efforts would be lost now. These symptoms are not caused by the procedure itself but rather a consequence of the damage of the thyroid gland and the inability of your body to produce thyroid hormone. Symptoms of a moderate or severe reaction that require urgent medical care include: Severe vomiting. I had never been to endocrinology prior and had no idea about thyroid function. Tips for Eating and Cooking While on a Low Iodine Diet. Iodine is a mineral that your thyroid uses to create thyroid hormone. I expect to be back to probably about 60 to maybe 70% and that is pushing it. If contrast dye is used, you may feel some effects when the dye is injected into the IV line. This is an extension of what weve already discussed but its worth spending some time on this specific point. ordinary table salt and sea salt. Personally I doubt that what you describe is RAI-related because it is ongoing and (in my experience) reversible and because iodine does not have an obvious connection with hair follicles, whereas thyroid axis hormones . The connection between your weight gain and hyperthyroidism is explained here: https://www.restartmed.com/methimazole-weight-gain/. Read More. Over the next 5 years I gained another 10 lbs. If weight loss is your primary goal then I would take a look at my weight loss program here: https://www.restartmed.com/hormone-mastery/. After you get the dose, the scanner checks your entire body for signs of radioactivity. Most of the radioiodine in your body will come out through the urine and stool. I am on my own taking more precautions, and going at this as a Haz Mat Tech, Yes, Im that too, as I am a volunteer fire fighter/EMT/ and wear many other hats as well as Haz Mat Tech and am certified in Decon operations. Reply. Hair that is not being treated directly with radiation can be dyed. So I had the ablation without much research on my own, and now Im at the highest weight of my life and miserable. Nuclear medicine uses small amounts of radioactive material called radiotracers. A thyroid scan is a type of nuclear medicine imaging. Ultrasound can also be performed if . The majority of radioactive iodine is taken up by your remaining thyroid cells, since the thyroid normally uses iodine to make thyroid hormone. 2022 Dr. Westin Childs | Thyroid & Health Supplements That Work Built withGeneratePress and powered by Kinsta. You usually take radioactive iodine as a capsule that you swallow. biotin or a hair and nail vitamin might be good. Its often a far better use of your time to find a new doctor than try to convince an old doctor to change what they think: https://www.restartmed.com/how-to-find-a-doctor-to-treat-your-thyroid/. I had RAI about 39 years ago and every year Im tested for my TSH level which always seems to be in the normal range. The permanency can be seen as a benefit as patients condition will become stable and symptoms can be more easily controlled. Hair follicles, which can influence hair shaft structure, length, and color, are known to respond to hormones including TSH. I tend to have a high heart rate when I exercise it goes up to 130 righ away then may go as high as 174 at harder workouts. I am gaining weight! Then she said I would have to have iodine radiation if these pills didnt work. The radiation will pass out of your body through your urine within days. A large study found an increase in some cancer types in people who had radioactive iodine treatment for hyperthyroidism compared with the general population. Important to men is the fact that radioactive iodine can cause short-term reductions in sperm count for up to 2 years after your procedure (8). Hi,I have awhile to have enough hair to dye.I also have another 4wks. I have Graves Disease and lost 40 pounds. Many thanks in advance for any help. I had RAI back in 2010 For Thyroid nodules And I have been on hormone replacement ever since I get my blood tested every 3 months And Im either too high or too low So I keep getting switched from a 112 To a dose of 125 This is been going on for several year several years so now my doctor has me switch every other day Between the 2 doses to see if this will stabilize my levels My problem is the weight gain That came after the RAI treatment treatment.. Stay at least six feet away from other people, including members of the public, family members, and co-workers, for three to 11 days. Prior to my RAI my level was .03. The issue now is that I have no refills on the levothyroxine and have not had any blood work in about 2 years. At that time my numbers were so low I was experiencing eye problems. This is more common if you still had a large part of your thyroid gland when you have radioactive iodine treatment. With all I forgot I had posted prior. Thank you for any advice! When they injected RAI contrast dye through an IV for the test, I went in shock and they stopped the testing until later that day. It's permanent; once you take the iodine capsule there is no changing your mind. 3 Anaphylaxis is a type of allergic reaction. . I would say many of your symptoms are unusual but this article highlights some of the routine side effects that may be experienced. They wanted to give me more RAI IV for test, but I refused and I know I would have died had they done that. Many clinical studies have also confirmed that weight gain after RAI is a real risk. In regards to diets that can help, please see this article: https://www.restartmed.com/hypothyroidism-diet/. If I have all of these symptoms and have had levels increase so much, is it worth seeing another dr due to my history or do you think this is normal? Strange I know. Welcome to my website! But what if you only destroy 30 to 40% of your gland function? In the mean time, Im feeling worse about myself than with this original post. What type of cancer is treated with radioactive iodine? Also learn more about our which will minimize the contamination in your home's isolation room. fresh bread. The thyroid gland is the only tissue in the body that takes up and holds onto iodine. Radioactive iodine (RAI) is a treatment method for hyperthyroidism and thyroid cancer. She is the author of "The Thyroid Diet Revolution. Now I cant stand the heat and I used to go to the beach all the time. Its been a week after Radioactive iodine is a treatment for papillary and follicular thyroid cancers. Pls.can u explain about this. My Dr. stated that my MTHFH enzyme is blocked indicating a genitic issue. Any idea Sir ? They may even preemptively schedule you to start thyroid hormone treatment within a few weeks of the RAI procedure, just to be safe. Call (800) 542-1123 or visit www.labtechinc.com to learn more about protecting your home against radioactive iodine. Thanks. IM HAVING A HARD ENOUGH TIME WITH WHAT I TAKE NOW! Calculating the half life of radiation, it will be a couple months before I can be around nursing home residents and pregnant women, and each and every nursing home has several pregnant women on each unit and each shift. I cant find anything suggesting these are expected symptoms after RAI. I had a partial thyroidectomy a week ago, (Right lobectomy) With this my Dr. noticed hard bumps in the tissue, and sent to pathology and cancer was found. 2023 Dotdash Media, Inc. All rights reserved, Mary Shomon is a writer and hormonal health and thyroid advocate. Free androgen index was :24.21(24-104) and endocrinologist said RAI didnt work I dont understand how thyroid levels goes up after RAI treatment 21.04.2017). I was exercising and my nutrition intake is organic most fruits, vegetables, meets grass fed etc. Severe reactions occur in 0.04% to 0.02% of people receiving contrast, with a death rate of one person in every 170,000. You can omit the leptin resistance rx if weight isnt an issue (but it tends to be something that many RAI patients struggle with). The majority of radioactive iodine, therefore, will be absorbed by any remaining thyroid cells. It sounds like you are not being treated adequately. My last blood test shows TSH of 0.02 and I have been asked to go for a follow up test. I have been tested and my doctor says that Im right where I need to be. I would recommend that you read this article for more info: https://www.restartmed.com/normal-thyroid-levels/. I don't practice medicine anymore and instead specialize in helping people like YOU who have thyroid problems, hormone imbalances, and weight loss resistance. All rights reserved. If you have heard of this before is there a natural vitamin or something that will help me control the heat in my body? Theres no way to tell if your eye symptoms are related to your thyroid without first trying to optimize your TSH (which should be your next step). My question is even though my thyroid is dead, should the T3 and T4 level be tested as well? Add black tea to the darker colors above to help the color last longer. and seriously lethargic?! A single injection is given subcutaneously (i.e. Please see these articles which explain why weight loss is so difficult after thyroid removal or RAI: https://www.restartmed.com/levothyroxine-thyroidectomy-patients/ It may take some trial and error but 80% of patients should approximate normal symptoms over a few months. Want to know why I'm so passionate about these topics? Radioiodine treatment avoids surgery, anesthesia, and anti-thyroid drugs. Warren Janowitz Radiologist Miami, FL. Because it is entirely possible to only destroy a portion of your thyroid gland and not the entire gland. Then I get up at 7AM and during that first hour get my daily weight after I void and empty my bladder, and strip down for a true body weight. But you probably at least know a little bit about RAI or you wouldnt be here. Iodine-131 (I-131) is radioactive. But my surgeon palpated three nodules and pathology report confirmed PTC, so a completion surgery was scheduled and performed this past April, and that lobe also showed cancer nodules on pathology report as well as some tissue purposely left because some cancer nodules had invaded my vocal chords. Some allergic reactions can cause severe anaphylaxis, but this . I eat a diet free of inflammatory foods and exercise 3-5 times a week, but I cant get my weight to budge more than 5-10 pounds. When you are given radioactive iodine, it is taken up by cancer cells and destroys themincluding those that have spread to the lymph nodes or other parts of the body. Does Taking Thyroid Medication Cause High Blood Pressure (Hypertension)? Sign up to receive 20% off your first order. This is my story. Will destroying your thyroid gland have long-term consequences? Thank You. Even at this age, I still want to feel and look pretty. If radioactive iodine treatment (RAI) is recommended as part of your treatment for Graves disease, hyperthyroidism, or thyroid cancer, you will most likely be given it as an outpatient. Small amounts of I-131 may also leave through your saliva, sweat and feces. This comes in the form of a simple hormone medication that you can take each and every day to help normalize your thyroid hormone levels. Any suggestions? I had the motto: Ive never met a stranger, they are just the friends I havent met yet. Now, I would rather not talk to anyone, and if Im forced to, I keep it to bare minimum. If possible, its always ideal to try and normalize your weight BEFORE the procedure. What will you really expect after your RAI, side effects Protecting Your Family After Radioactive Iodine Treatment. It turns out that thyroid hormone is actually necessary to not only thrive in life but also to survive. For example, uranium has thirty-seven different isotopes, including uranium-235 and uranium-238. Results were. My weight seems to be of no concern to him as long as my blood work looks okay. It is not common in the United States to hospitalize patients after RAI, but if you are receiving a particularly high dosage of iodine 131 and have no way to protect children or babies, it may be an option. Affected cats produce too much thyroid hormone. For my surgery in April, I had a double whammy because a week prior to my surgery I had a molar tooth extracted with surgical dental sedation, and was still on a soft diet, so that was easy, they supplied me with baby food pureed fruits the entire time I was in the hospital. I love to write and share what I've learned over the years. These are the questions that I want to focus on today and hopefully answer many of the current questions that you already have. You wouldnt want to use a steroid on it unless you know what it is. My entire life has been turned upside down. So, if I go to bed earlier, I have to set my alarm clock to get up to take the damn pill, then have a hard time to get back to sleep, then just when I do fall into slumber, its time to get up and going for the day, and take a list of other meds, and monitor VS and glucose readings. Radioactive iodine works by taking advantage of the physiology in your body (1). You can expect to live a fairly normal life after radioactive iodine treatment but your life will probably not be exactly as it was before your procedure. As I am not a doctor, my specific question is why does the level of levothyroxine I require change if my thyroid was destroyed? Redness, tired eyes, they were seeing double, and not accommodating going from reading to distance. I have the symptoms of hypo not hyper, is she wrong? I dont want radiation therapy especially as she hasnt even told me what caused this. I have Hypothyroid Mom readers struggling with hypothyroidism now since treatment for their Graves' with radioactive iodine (RAI) or thyroidectomy.